




Well -- it all began on Thursday last week, and so life goes in cycles! At the end of my first week of brain radiation they took some films of me in my face mask and then, well, radiated me again. I have this imagery going in my head these day during radiation. The big machine buzzes about two minutes on one side of my head and then the electronic behemoth robotically swivels around the front of my face to the other side of the head and buzzes there for about two minutes. I can't feel anything at all -- just a noise. So when they are setting up the machine I imagine one side of my head opening up -- like two trap doors springing open. And then there are all these cute, scrappy cartoon-like figures (kind of Japanese like -- white rabbits, "helllo kitties," I don't know) getting ready like they are going into a boxing ring. The tumors are these little islands of the bad guys (who don't look too different but they are clearly ailing these days -- having trouble breathing and even standing up). The minute the buzzing begins all my cute, scrappy friends go NUTS -- kicking, punching, biting, stomping, shouting yippppeeee, and so on. And then the buzzing stops and they are supposed to stop, but they keep kicking and punching -- the bad ones can't stand up and many of them are ripped to shreds. The the machine moves to the other side the head, one trap door closes and the other opens to a repeat performance. This has been the last two days. Maybe I'm nuts. Believe me, if you tell me something's wrong with my head, I'll believe you.
So my big injury of now is a lovely little burn that I managed to get last night by cradling a hot cup of tea in the crook of my arm. Don't ask. David included an impressive photo of the strangest.... That is NOT a slug on my arm. It is a giant blister. Normally I would't worry about such a thing, but it happens to be on the arm with no lymphnodes (from the breast cancer six years ago) and I am on chemo again so my general infection fighting system is down. Well, anyway -- the doctors are keeping an eye on it and waiting for it to pop. What can I say but dumb, dumb, dumb?
I had my consultation with the acupuncturist and will have my first appointment Saturday after that the basic yoga class that they offer there as well. On Monday I made an appointment with a nutritional and supplements consultant. So lots to look forward to in the next days. Thanks for the tips I have been getting from people about alternative medicine these past days! Very interesting and helpful.
I am definitely feeling more and more tired. Par for the course, I'm sure. I just have no reserves left. The acupuncturist reminded me of that. He suggested that I only try to do half as much as I normally do and then I should be able to make through the day without feeling catatonic at the end. That is so hard for me to do though! Go, go, go. Why can't I stop? David is very patient with my patient status (I think he would like that pun) and encourages me to let him know when I need a rest.
Food today? Lots of yoghurt -- I am terrified about the propect of mold in mouth! We went to the Oyster Bar and Grill in Grand Central Station for lunch. We split a half dozen Glidden Point (yes, Liz -- they rock!) and Kumamoto (for those Oregonians in the know!) oysters. We also split some New England clam chowder and a Maine lobster roll. It was perfect! Lisa -- I will have check your deli recommendation -- but maybe I shouldn't touch chicken soup if it doesn't measure up!
The photos today show me brushing my teeth because David insisted people should not only see me smiling (yes, this is the REAL me), David and me at the daily stop-- Pain Quotidien, me admiring a Calder somewhere on Park Avenue and me exhausted with my friend Roxanne at the end of the day.
17 comments:
Love the imagery , Mara. That can be a very effective way of supporting the treatment.
Your Japanese style cartoon characters sound cool....
Keep on enjoying the niceties and sleep.
Good visualisation ! Like the trap doors ! Keep it up and leave out the tea...oh man..looks impressive, that blister. Good luck with the yoghurt, also. I like your teeth-brushing outfit.
Love, hugs and kisses ans wagging of tails from us here, Ems
Continue to kick the poop out of those bad guys. When I was reading about them, I was hearing the tune "everybody was kung fu fighting...." and I had to chuckle. love, Dan (Martinage)
Oh yes, the imagery is AWEsome!! I, too, was sorting through in my head some music to go with this -- maybe Elton John, Rolling Stones, or more surreal like something from the Nutcracker, Swan Lake, Tom Waits' Tom Traubert's Blues, or either Waits' or the Ramones' version of "I Don't Wanna Grow Up"...? Or, skip the music and go for Speed Racer-esque sound effects? I'll ponder this a bit more and get back to you with a set of options ranked according to relevance, ambience, and accessibility. Lots of good vibes coming from Maryland from Andrew, Donna, Ted, and Katherine
Ah, Mara, you come at life full bore! I love the imagery of the little kick-ass characters hard at work in your head. They are doing good work. Keep fighting. You're a winner. :-)
Pam Osborne
Hey there :) Uhm, don't know where to start. Let's introduce myself first. I'm a friend of Zlatna's and she's told me a lot about you. I even have that interview for her radio show stored on my PC. I think you're awesome. You must be :)
It feels a little weird bursting in here, but... you can use some positive energy from around the globe, don't ya :)
And maybe you would like to check this out, too:
http://www.crazysexycancer.com/
You rock, girl :)
Lots of hugs from Sofia.
Yana
Hi, sweetie! I just noticed that my friend, Yana, (a poet and a doctor)has joined "the big family" forum. We had an hour-long talk about you (if not longer) yesterday, and lots of times before that.
I do love your imagery! You should write a book when you are out of that spell. I can imagine how many things you'll "see" by the time radiation is over! We all admire you so much! You are our brave girl, our closest long-distance friend! Keep it up, dear Mara, get better, get well, get well! Hugs and kisses! Zlatna
You may be physically tired, but you clearly have amazing spiritual strength. Add to that all the positive vibes coming to you from around the world and those little kung-fu midgets have a lot of fans rooting for them. Lots of love, Ed
M - You read my mind on the Oyster Bar! I wanted to suggest going there on Monday but it did not feel in the cards, so I'm glad you made it there. Be sure David takes you next time for a drink in the Campbell Apartments, also in Grand Central.
In the meantime, I think we should sell your idea of Hello Kitty (Medical) Action Figures. It's the perfect blend of Eastern kitsch and rich Slavic fantasy imagery. Mikhail Bulgakov would be proud. It's simply fabulous. Big hug, L
Love your blog and the way it is creating a virtual community centered on friendship! The burn looks nasty, but like the visualization and can't encourage you enough to keep at it. Years of mediatation have taught me there is much we do not yet understand about the mind - but that it responds well to positive thinking, and the mind-body connection should not be underestimated. So good to see you being you in so many of your photos!
Much love, Michelle
Scars are ok b/c they can remind you later of a war won. Hope it gets better soon. It's nice to meet David, even just pictures. XOXOX Blanche
How is your blister, Mara? I liked the way someone put it - a mark from a war won! Is Roxanne as lovable as she looks? She looks a great comfort, too, for all of us to envy:) Have a healing day, you are constantly in our talk!
Lots of hugs and kisses to you and David!
Zlatna
Hello darling,
I really wasn't planning to post on your blog this much, since my entries seem to be quite a bit longer then other folks (I do love to talk ;-). However, after reading your last posting, I just couldn't resist . . . Your Hello Kitty cancer fighting imagery is amazing. Plus, I think I read somewhere once that this is precisely the best thing cancer patients can do to participate in their own healing - visualize their medication and their own healthy fighting cells kicking the cancer cells' collective ass. And turning it all into Japanese anime? Like the commercial says - priceless. I think andrewdonnateddatherine's suggestion of accompanying Speed Racer sound effects is perfect ;-).
And as for the burn . . . this next part is a bit long, but I find it hysterically funny, and so I totally hope you will too (because laughing is good good good for you, girl). This happened to my friend Eve who I don't think will mind if I tell it to you. Eve is a Brooklyn native, and I know her from art school. She is also gorgeous, tall and willowy and graceful looking - everything I'm not! But she's about as far from actual graceful as you can get ;-).
One day, she showed up at the studios with this horrible 2nd degree burn on her chin, right under her bottom lip. "EVE," I said. "What the hell happened to you???"
"I burned myself."
"Well, duh, but how???"
"I can't tell you, it's too stupid!"
"Oh c'mon Eve, I promise I won't laugh or make fun of you - honest!"
"Well . . . what happened is I was reading and took a huge gulp of my coffee. And it was too hot. So I burned myself."
"But how did you burn your chin so badly? Why the hell didn't you just spit it out as fast as possible?"
"Okay, this is the part where you can't make fun of me! I didn't want to spit it out because I didn't want to make a mess on the kitchen table . . . "
(Editor's kibbitz - Eve's apartment always looked like a cyclone blew through it, so I really don't know why this was of such concern . . . )
". . . so I tried to keep it in my mouth while I ran to the kitchen sink to spit it out, but it was so hot that I couldn't, and it dribbled out onto my chin and that's why my chin is burned! And don't laugh and don't make fun of me!"
I still dine out on that story ;-).
Love, Lisa
p.s. I guess you can have chicken soup at the Brooklyn Diner . . . ;-). Their cheesecake isn't as good as mine either! Seriously bubeleh - eat what makes you feel the best. They really do have good Jew comfort food there, as well as other great stuff. Although it sounds like you're really into oysters at the moment ;-).
mara-am finally back in the land of wireless so i can read your blog on a full screen and make a post. (but as i said, you can read it on blackberry fine, but can't make posts). even though you say you are spent, your images of kung fu fighting tell me that the fighting spirit lives on. am flying back tomorrow and will call you as soon as i get in. can't wait to see you. luke sends his hugs and kisses too. xo, kk
Mara, I can just see this little characters dancing around and duking it out in your head!! Thank you for making this all more real for the rest of us--you really should write a book about this some day! So glad to hear your spirits are high (so much more than most people I know who aren't going through anything like this!). I hope to see you when I am back in mid-October. Hang in there and keep the stories (and the next installment of the battle coming...).
Dayna
I've heard those little fighters can work wonders - I'll be sure to spend time each day sending them moral support. I am so glad you love the wigs - the red one is really cute on you! Though the pixie cut makes your eyes stand out and is quite lovely. I know you must be exhausted - try to be patient with yourself and breathe. Here's a big big hug from Kosovo!!
xoxo,
Judy
I lived on these japanesse cartoons as a little girl. I missed you in amman and NY. I just got to palestine and spent a night in amman on the way. Had dinner with simon and marta...apparently you owe them a dinner and I want in- could be in ramallah if you want! Kisses, Su'ad
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