Wednesday, September 19, 2007

A day with the doctor and with friends






It seems that every Tuesday I will have a weekly consultation with my radiation oncologist, Dr. Kathryn Beal. She said that I should not expect the radiation to produce instant results. It will take weeks for the numbness and speech impediment to begin to subside. They won't do MRIs until 5-6 weeks after the radiation has ended, as it takes a long time for the body to slough off the dead tumor debris.

Here are some shots of our meeting. Note the number of prescriptions. For those of you who are avid lay-medical people, like me at this point, here is my daily prescription regimen: Morning -- 4 mg decadron (steroid), 75 mg Effexor (still fighting hot flashes), 20 mg Nexiumm (avoiding an ulcerated stomach), Kytril tablet (12-hour anti-nausea); Lunch -- 4 mg decadron again; Dinner -- 4 mg decadron again; Bedtime -- 140 mg Temodar (chemotherapy), 10 mg Ambien (or I would never sleep on all these steroids). Starting today I need to add in Bactrin once a day to prevent PCP pneumonia which can go along with the steroids. And... I have been advised to eat yogurt daily to prevent a fungus from growing in my mouth. David is still kissing me because my mouth is still clean (albeit dry).

So I guess I shouldn't wonder that my body feels strung out or that my stomach is upset. However, that said, it really is all painless. Radiation just whizzes by -- no more than five mintues of face mask and buzzing in the morning. Today, David and I discovered the integrative medicine wing of Sloan-Kettering. It is so impressive. It is about about six blocks from the hospital -- so tastefully zen. Insurance doesn't pay for it -- but luckily S-K has recognized the need for this kind of eastern therapy to go with the vicious blast of western medicine one receives. The center offers, at reasonable prices to cancer patients (okay -- reasonable is relative, I realize), a host of services -- acupuncture, massage, reflexology, reiki, shiatsu, meditation, mindfulness-based stress reduction (MBSR), self-hypnosis, yoga, the Alexander Technique, Qi Gong, and lots of other restorative fitness and health combos. I have a free consultation this evening with the in-house acupuncturist, Dr. Chen. Then, sessions would be $90 a session. Outside S-K I have done a little acupuncture and it is usually about $110 a session. So this is a bit of a break. But the docs will be totally in tune with my treatment and in the same network as my oncologists. I am excited to explore this.

Yesterday was a fun albeit tiring day. After the doctor's appointment, David and I met Linda, Jack, Audrey and Evie at our favorite next-to-hospital cafe, Le Pain Quotidien. After coffee, we all walked down to fifth avenue, talking and ultimately shopping a little at Takashimaya. The Hamiltons had to leave much too soon -- I simply can't get enough of them and little Audrey who bounces down the street with an energy and joy that practically brings tears to my eyes. David, interestingly, proved a good skipper himself when taking the lead with Audrey.

Later, David, Evie and I had tea on the sixth floor of Takashimaya among amazing floral arrangments. Then Evie knew about a little Japanese noodle restaurant down the street, which we visited -- a perfect lunch. I am sure we'll go back. Then a walk through Central Park as a lead-in to the pedicure Evie and I had. The day wrapped up with one of Suzy's stellar kitchen performances -- melon and prossciutto, salmon pasta, black cod, salad and fruit and cheese to top it all off. I should be making people feel more sorry for me, I know -- but, frankly, I am not suffering right now! More later.

9 comments:

Katarina said...

Dearest Mara,
This sounds like a perfect day in a perfect company in a perfect city. THAT is the best recepie of all that anyone can give you. Cheers and love Katarina

Unknown said...

Hi Mara and David,
bad environment
lousy food
ach ach ach wat zielig !!
Trouwns, it eems that eating ginger (pills ?root ? balletjes? David ik bedoel die geconfijte suikerige geberbolletjes) is great against nausea...
loved your wigs (wiggs?>?) and crewcut
much love from the dutch connection
hug Ems

Unknown said...

terrible spellingmistakes....
trouwEns
Seems
geMberbolletjes
oeps
more love
Ems, Jeroen, Loodi, Kiphond, Barend

Blanche said...

Hey Mara!
My dog is sitting next to me with head cocked wondering why I am drooling!It sounds like you should write a book on a "private culinary tour" of New York? Keep up the good eats and reports!

BIG Hug & Kiss,
Blanche (and Stoli...woof!)

Zlatna said...

Mara, sweetie, that sounds great! I can imagine that long delicious hang-ons with beloved people! Been there, done that, as they say (with you, of course)! I have the feeling I were there. Keep feeling that way, my darling!
It probably gives everyone (as it does to me) that great melancholic/romantic feeling - starting their day with your report. I keep praying for the best for you. We all do. I think it keeps coming your way.
Keep exploring and enjoying!
Big, big hugs and kisses!
Zlatna

Unknown said...

What a great update Mara - I'll be really interested to hear how your acupuncture consultation goes. I am a complete convert to the treatment and have been going for the past two years for various ailments. And I find it so relaxing that I think I shall look for one wherever I end up on my travels. Nick on the other hand who had it to treat shingles earlier in the year, only goes under duress! My only challenge is that each of the two acupuncturists I have had both claim regularly that I should eat more meat! My latest compromise with her is to take protein shakes once a day!!! Tons of love as always - a couple of MC people have told me they have set your browser as their home page so they see you on a regular basis. Keith Polo sends many greetings too - not sure he has the internet connectivity to get onto this.
Hugs,
Anna

Lisa said...

Hello bubeleh,

Yes, it's the Jewish mother again, hailing from the opposite coast where we aren't a dime a dozen ;-). It does indeed sound like THE perfect day - good food, wonderful friends, a pedicure (my personal rejuvinating fave) and some restful time spent in an eastern environment. Man, I could use a day like that meself . . .

I am a firm believer that taking care of one's mental and emotional needs are not only integral to, but essential for any and all physical healing. Given all your body is absorbing right now, "treating" yourself to these days is really sound medical practice.

It sounds like SK's integrated medicine center is excellent. If it were covered by insurance, it would be both excellent and perfect. But we do live in the good ol' US of A, so of course if something actually makes good political and social policy sense here, one can be assured that the opposite practices will be in place (starting with private health insurance itself, but I'm going to shut up now ;-).

Anyway darling, keep having wonderful days. And I don't think any of your wonderful friends (and my GOD there are so many folks posting incredibly loving messages on your blog - I think you have made friends with the entire world ;-) feel sorry for you. I certainly don't - you're a mensch. I have an incredible admiration for your grace and courage under fire.

Btw, the Brooklyn Diner (57th between 5th and Mad, or somewhere thereabouts) has incredible Jew food - I'm sure their chicken soup won't be as good as mine, but you might want to give it a shot anyway. You might get to see Jay-Z, hip-hop impresario, there too. WOW! A REAL LIVE celebrity! ;-)

Love, Lisa

Unknown said...

Hello friend! Mara, my goodness it is nice to see your face!! Your smile is still so infectious. I can hear your laugh when I see your pictures. It has been far too long.

You know, I think I dreamed of you once with different colored hair, but never purple....it was probably the Corps' maroon color I dreamed of :) You look fantastic in the wig, not to mention in your pics with David.

Your day yesterday sounded magical.

All good here. The family here is sending their love from Rhode Island...so you pretty much have half the state here sending good vibes your way.

I get down to NY every now and again, as well as DC. I hope I can see you in one of those places.

I love reading all the comments....especially those from fellow Corps folks....like Lisa! I knew it was from her the moment I read her intro bulbeleh!

big hugs from the Scrivens, Mara,

Karen

Sarah Cotsen said...

Mara,

We are thinking of you here in Maine. I am so glad that the DVDs are a hit. Reading this blog makes me realize how you have touched so many people and how much they love you. Will send you the Entourage DVDs since with your new styling look and all your friends it would only be appropriate. Lots of love.

SarahXX

It's Mara

It's Mara